Encarna was born in Puerto real, Cádiz, Spain to a family of six brothers. She, a sister and her older brother were diagnosed with ataxia, a neurodegenerative hereditary affection that causes loss of coordination of movement and is a disabling disease. In disagreement and rebellion, upon seeing other ataxia afflicted marginalized and often isolated from social life, in 1989 Enconda decided to create the Association of Ataxia Affected in Andalusia, Spain (Federación Andaluza de Asociaciones de Ataxia). Since then she has assembled a group that is today one of most outstanding, organized and active associative movements of Andalusia.

ataxia.andalucia@gmail.com